Rodrigo and Joy

Our journey of creating family – A fertility endeavor

Archive for January, 2007

Why an ovary transplant?

One of the most asked question people have once i share with them what we are doing is “Why an ovary transplant?”
Its a great question! There are other ways to get pregnant, and other ways to bring a child into our lives. What is also true about Joy is that since the cancer treatment shut down her ovaries, she no longer produces hormones as her body did before, which means she is in an menopausal state. This has lots of ratifications across her daily life, and our lives together. Everything from bone loss, to her not feeling like herself, and many many other things. The current treatment for her state is hormone replacement therapy (HRT), taking a daily dosage of hormones, same pills as the “pill” i think. This does help lots, but will never match her own body producing exactly what she needs. There have been recent studies that suggest HRT leads to a higher incident of cancer in women. All in all, it would be a good thing to let her body produce what it knows best. Getting pregnant, we could go down the in vitro fertilization (IVF) route, which has come a long way in the last 20 years, yet success rates are still lower than natural conception. Each IVF “round’ can cost $10,000 or so, it could take one round, or many for one child, and if we wanted to have more kids, then we would need to do another round. There is also convincing naturally, something we both want to do.

When we looked at all the scenarios, doing the transplant is the best choice. It will bring her body back to producing all it needs all on its own, we will conceive naturally, and we can have numerous children without having to go and redo any treatment. It was still a hard decision, i had heard rumors of this procedure before we met Dr. Silber, and at first i didn’t like the fact that she would go “under the knife”. The more we talked, and really thought about it though, it was clear, the transplant is what we want.

i was just thinking about this a lot today, and wanted to write my experience.

getting the story out

Today I had to have more blood work done. I was telling our story to one of the doctors that I see sometimes and to the phlebotomist that drew my blood. they were both so excited to hear about what was going on. it makes me happy to tell people and get such positive feedback. It is great to see that we are impacting other people. I am excited to share our story and to have people see what amazing things that science is allowing us to do. People have been sending our website link all over the place. It would be interesting to know how far it goes. Maybe people across the country or even the world will be touched by our story and this amazing journey that we are on. I hope so.

One week before we leave SF

It is one week before we leave SF and head to St. Louis. I put together this video to make sure i can do everything on the laptop, and be able to post once we are away from home.

As Joy says in the last post, all the support from everyone is making a huge difference, both financially and emotionally. Thank you so much for your caring words, notes, and donations.

So lucky

I was just looking at all the responses that we have gotten so far.  I feel so lucky to have such an amazing community of people supporting us on this journey.  it is so encouraging to know that so many people some we know , some we have never met care enough to write to us or donate or just visit our page.  i feel really lucky.  i feel really loved and full of gratitude.

Maeapple

Altruism- unselfish interest in the welfare of others

This is one of my favorite words to describe my sister Maeapple

I have had the experience in the last few days of sharing my story about what we are doing and realizing that there is no way I could honor her enough for the sacrifices that she has made for me and continues to make. I can only imagine what it like to be asked to give so much of ones self.  And she always answers with an of course.  There is no hesitation.  She is so willing to give herself no matter what is needed of her.  A truly selfless act of generosity. 

When she donated her bone marrow stem cells to me she had to leave her family for months and come to Seattle with me.  To be put to the needles to give up her blood.  She has never complained or asked for anything in return.  Whenever I try to thank her for her sacrifices she shrugs me off with complete modesty and humility. “it was no big deal” she says. Now I ask her to give up a part of herself that will not regenerate like blood, but she will be giving to me forever.  And she does without a second thought.  Just because I need it.  Just because she loves me.

What would I do with out my sister Mae?  I would have died with out her.  I would remain childless without her.  She is my best friend; she is my kindred spirit, my physic link, my soul sister. I have been blessed by her in my life.  She is my council, my stability, my sanctuary, my consistency.  I know she is always there for me.  And in turn I will always be there for her.

So many things to coordinate

As the day of the surgery gets closer there are so many things to coordinate. I have spent the so much time lately coordinating with the labs, and the hospitals, and Dr. Silber’s office, its at times quite stressful.
Today i found out that non of the test results that Maeapple has been doing have been sent to the office in St. Louis, so now those have to be tracked down, and the lab is closed today, so i hope we can get all that done tomorrow. Some of Joy’s test done at the VA where incomplete, so we have to get those done again, its quite frustrating to have to do some of these test over again, we also have to get copies of all her original HLA machthing tests from Seattle to St. Louis, got to do that tomorrow, and make sure i get all the release forms from the VA today. gonna be a busy evening.
We also got tons of info from Dr. Silber’s office today, and have to read all that tonight, and send some info back. We got all the price breakdown today too, need to go over that and make sure we can cover everything by the deadline of next week.
Will post more once i slow down some in the evening. It just seems like i have been going 100mph all week.

B cell cross match: check

The tests that we needed to coordinate last Wednesday got all done correctly.
I just spoke with the Barnes Jewish Hospital HLA lab in St. Louis and they received all the samples safe and sound. This is great! now we should have results next week, though we know it will be a match.

Video Testing

Learning how to post videos up on the blog.
Here is my first test.
This is a slide show my brother made for us for our wedding last September.
Enjoy.
i will test out more videos later in the weekend.

Tests please

Since we visited Dr. Silber in December a slew of tests where ordered primarily for Joy and Maeapple but also for me. So far so good. I had my semen sample test done a couple of weeks ago, and the results came out normal. What i didn’t anticipate about this test was how much i would end up feeling around doing this test. I alway thought that my results would be fine, though still in the back of my mind the questions lingered “what if it does not come out ok?” no one really tells you about that, i guess you are suppose to expect it.

For the past couple of weeks we have also been trying to set up a T & B cell cross match test.  This is to determine if Joy and Maeapple are suitable matches i believe. Well turns out that the VA does not perform this test, and many labs here in the bay area don’t perform this test. So we have to send out the sample to a lab in St. Louis.  It has been a bit of work to coordinate it all, since both blood sample have to arrive in St. Louis at the same time within 24 hours after the blood has been drawn.

It looks like it will happen tomorrow, Joy and Maeapple will have their blood drawn at separate locations in California and have the samples FedEx to St. Louis.

The Barnes Jewish Hospital in St. Louis HLA lab will be doing the tests for us.

We are not worried about the test results since we already know that they are a match, since Maeapple has already donated bone marrow to Joy. They just require a new test for each procedure.

Touched by support

It has only been a brief time since we put up the blog, and sent it out to friends, and already support emails and donations are arriving. It deeply touches me to see complete strangers send and email or make a donation to people that don’t know each other. It fills me with hope, and light.

Thank you so much to everyone who is helping us along on this journey.